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Last Modified Tuesday, November 04, 2014

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What's New at the MDIC
 
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Nov-04-2014
May-13-2014
  • We have received inquiries regarding autologous conditioned serum (ACS) therapies known as Orthokine and Regenokine in the treatment of Meniere's Disease.  As of this date:
    • There are no published authoritative studies reported in PubMed.gov on Regenokine or Orthokine as applied to Meniere's Disease.  Click here.
      • There are only six entries of any kind as to Orthokine in PubMed.gov; all pertain to orthopedic disorders, principally osteoarthritis.  Click here
        • Osteoarthritis is a disorder in which cartilage between joining bones, particularly in knee joints, degrades, ultimately resulting in bone-on-bone contact in the joint.
      • There are no entries of any kind as to Regenokine in PubMed.gov.  Click here.
    • There are no clinical trials, past, present, or pending, reported in ClinicalTrials.gov, on Orthokine or Regenokine, as applied to Meniere's Disease.  Click here.
    • Thus, there is no authoritative published evidence-based support for Orthokine or Regenokine as a treatment for Meniere's Disease.
    • The only reports that we have seen for Orthokine or Regenokine as applied to Meniere's Disease have been anecdotal press reports as to the experience of Dana White, President of Ultimate Fighting Championship, which purport that White had been diagnosed with Meniere's Disease, that he had received Orthokine treatment in Germany, and that he thereafter recovered to the point where he believes he was "cured."
      • We are extremely happy for White's recovery, but Meniere's Disease is subject to misdiagnoses and fluctuations and spontaneous temporary remissions which have in the past led to mistaken beliefs in unproven treatments as "improvements" and "cures."
      • Why we should be skeptical of claims of new treatments for Meniere's Disease.  Dr. Timothy Hain.
      • As we say on our Treatment Page: "The best medical studies (trials) based on science are those that are randomized, double-blind, placebo-controlled, that are subsequently peer-reviewed and published in professional medical journals, and that are replicated by independent researchers."  Click here to learn more about medical studies.
Jan-24-2014
Jun-09-2013
Apr-23-2013
  • Added to the Famous Patients Page.
    • Joni Woelfel, author.
      • Update April 23, 2013:  An article by Joni appeared in National Catholic Reporter here.
Dec-26-2012
  • Updated the following content on the Treatment Page under Treatment With Medicine.
    • Dramamine (but not Dramamine II or Dramamine Less Drowsy Formula), Gravol (Canada) (dimenhydrinate).
      • Dramamine (but not Dramamine II or Dramamine Less Drowsy Formula) and Gravol (Canada) are brand names for the antihistamine dimenhydrinate, which is also a vestibular sedative, the purpose of which in the treatment of  Meniere's Disease is to prevent or reduce vertigo and hence the resultant nausea by sedating the vestibular system.  Names and formulations vary and are subject to change; be sure to read the ingredients and potency listed on the package.
    • Compazine, stemzine, buccastem, stemetil, phenotil (prochlorperazine).
      • Compazine, stemzine, buccastem, stemetil, phenotil are brand names for the anti-psychotic drug prochlorperazine, which also has antivertiginous and antiemetic properties, the purpose of which in the treatment of  Meniere's Disease is to control vertigo and resultant nausea.
      • See:  Wikipedia and Medline Plus.
Nov-26-2012
Apr-18-2012
  • Added to the Famous Patients Page:
    • Famous patient and author Joni Woelfel has published her first novel, "Divine Adventures of Simon Templegate."  Read about it here and here.
Sep-13-2011
  • Added to the Famous Patients Page:
    • Mattias Ritola, professional hockey player.
      • Article, St. Petersburg (Fla.) Times, September 13, 2011:  Meniere's Disease diagnosis questioned.
May-06-2011
  • Added to the Famous Patients Page:
    • Katie Leclerc, actress, "Switched at Birth" television series premiering on ABC June 6, 2011.
      • Article, May 6, 2011, Zap2It.com (entertainment website).
Feb-10-2011
  • Added to the Disability Page under U.S. Department of Veterans Affairs:
    • We have been contacted by a veteran who anecdotally reports that he was awarded service-related retirement based on service-related aggravation of his Meniere's Disease, idiopathic or not (meaning whether the cause of the Meniere's Disease was service-related or not).  Thus, one approach might be aggravation rather than causation.

Jan-17-2011
Jan-04-2011
Jun-18-2010
Jun-03-2010
May-19-2010
Mar-25-2010
Feb-22-2010
  • After two years of unresolved problems with the blog software, and after two years without posting blog entries, we finally discontinued the blog on February 22, 2010.  For the past two years, we have been updating the website instead of posting to the blog, and that has been working well for us.
Feb-20-2010
  • The server on which the website is hosted went down on Wednesday, February 17, 2010, and remained down until this morning, Saturday, February 20, 2010.
Feb-07-2010
  • Added the following information to the Treatment Page:
    • If "it" triggers your symptoms, "it" triggers your symptoms, no matter what "it" is, and regardless of whether "it" triggers symptoms for anyone else.
    • Physical exercise, including sexual intercourse.
      • We know of no clinical research on the effect of physical exercise on the symptoms of Meniere's Disease.
      • Some patients anecdotally report that they experience attacks of Meniere's symptoms brought on by physical exercise, including attacks during sex.  Other patients do not have this experience.
      • Some patients anecdotally credit a so-called "healthy lifestyle," including what they believe to be "eating right" and regular physical exercise, with improvements in their overall health and well-being, including reduced symptoms of Meniere's Disease.  Other patients see no improvements in their symptoms.
      • Click here to search PubMed for Meniere's Disease and physical exercise research.
Oct-26-2009
  • Updated PubMed statistics on the Research Page.  Over the past 10 years, medical journal articles concerning Meniere's Disease, almost all of them relevant, have been added to PubMed on an average of every 2.6 days.  We are not ignored, no matter who says otherwise.
Oct-17-2009
  • Added the following information to the Diagnosis Page under diagnostic tests:
    • Vestibular evoked myogenic potentials (VEMP).  VEMP is a type of auditory testing, usually performed by an audiologist, that some believe to be of value in the diagnosis of Meniere's Disease.   VEMP as a diagnostic tool as applied to Meniere's Disease is somewhat controversial and there are authorities pro and con.  We believe that VEMP has not gained wide acceptance among experts as applied to Meniere's Disease.
Aug-29-2009
Aug-13-2009
  • Added the following information to the Famous Patients Page:
    • Under Les Paul, guitarist and father of the electric guitar.
      • The Daily Mirror, L.A. Times blog, August 13, 2009 (on the occasion of Les Paul's death), reprinting an article dated November 24, 1991.  "Since 1980, he has undergone quintuple bypass surgery and several operations for Meniere's syndrome, a vertigo-inducing ear disorder."
Jun-29-2009
  • Thanks to a tip from a reader, added the following information to the Disability Page:
    • U.S. Government Disability Website

    • Home Ownership Programs for Persons With Disabilities

      • For many disabled persons, home ownership may be a stretch, but there are some resources available, and it is always good to know one's options.

Jun-05-2009
May-16-2009
  • Revised and clarified the Disability Page as follows:
    • Two problems with obtaining veteran's benefits due to a diagnosis of "Meniere's Disease" can be causation and timing.  "Meniere's Disease" caused by military service is probably better diagnosed as a different form of endolymphatic hydrops.

      • Remember that Meniere's Disease is considered by most authorities to be "idiopathic endolymphatic hydrops," with "idiopathic" meaning "cause unknown." With the cause unknown, it is difficult to establish the time period during which Meniere's Disease began.  If the cause and therefore the timing is unknown, it is hard to say that it was caused by line-of-duty military service.

      • If one has endolymphatic hydrops caused by line-of-duty military service, then most authorities would say that one does not have "idiopathic" endolymphatic hydrops (Meniere's Disease), because the cause is known.  In that case, one might have "secondary endolymphatic hydrops" ("secondary" being secondary to the known cause of line-of-duty military service) or "delayed endolymphatic hydrops," where symptoms manifest subsequent to, rather than coincident with line-of-duty military service.  See more information on this subject on the Cause Page.

    • Tip to Service Members:  Be sure that symptoms of endolymphatic hydrops (whether Meniere's Disease or any other form) and anything else are documented in your medical records, ESPECIALLY in your separation physical.

Apr-15-2009
  • Added the following information to the Treatment Page:
    • Triggers are highly individualized. One might have a trigger that no one else has, and one might not have a trigger that many other patients have. Statistics aren't useful here. It's not a matter of "how likely" it is for one to have a particular trigger. Either one has the trigger or one doesn't.
  • Added the following information to the Famous Patients Page:
    • Kristen Chenoweth, singer, actress.
      • Chenoweth writes of her Meniere's Disease in her memoir,  A Little Bit Wicked: Life, Love, and Faith in Stages, as reviewed in Publishers Weekly (scroll down).
Mar-15-2009
  • Added the following information to the Famous Patients Page:
    • Television journalist Meg MacDonald renovates her home to accommodate her Meniere's Disease.
      • Update:  Article, Wilmington (Del.) News-Journal, March 15, 2009.
Mar-03-2009
  • Updated the excerpts related to Meniere's Disease disability from the official U.S. Social Security Administration manual "Disability Evaluation Under Social Security" (known as the "Blue Book") to the September 2008 edition.
Jan-15-2009

 

Copyright © 1997-2014 Meniere's Disease Information Center.  All rights are reserved.
All copying, including (but not limited to) websites, bulletin boards, forums, and blogs, is prohibited.
Click here for more copyright information.